What Are the New Social Security Compassionate Allowances Disability Conditions?

January 15, 2014

The Commissioner of Social Security, today announced 25 NEW Compassionate Allowances conditions making the total number of disabling conditions to 225. The Compassionate Allowances program speeds up disability decisions for those with the most serious disabilities. The new conditions include disorders that affect the digestive, neurological, immune, and multiple body systems. So far, almost 200,000 people with severe disabilities have been approved through this fast-track disability program.

The new conditions are:

  1. Angiosarcoma
  2. Atypical Teratoid/Rhabdoid Tumor
  3. Chronic Idiopathic Intestinal Pseudo Obstruction
  4. Coffin- Lowry Syndrome
  5. Esthesioneuroblastoma
  6. Giant Axonal Neuropathy
  7. Hoyeaal-Hreidarsson Syndrome
  8. Intracranial Hemangiopericytoma
  9. Joubert Syndrome
  10. Leptomeningeal Carcinomatosis
  11. Liposarcoma- metastatic or recurrent
  12. Malignant Ectomesenchymoma
  13. Malignant Renal Rhabdoid Tumor
  14. Marshall-Smith Syndrome
  15. Oligodendroglioma Brain Tumor- Grade III
  16. Pallister-Killian Syndrome
  17. Progressive Bulbar Palsy
  18. Prostate Cancer – Hormone Refractory Disease – or with visceral metastases
  19. Revesz Syndrome
  20. Seckel Syndrome
  21. Sjogren-Larsson Syndrome
  22. Small Cell Cancer of the Thymus
  23. Soft Tissue Sarcoma- with distant metastases or recurrent
  24. X-Linked Lymphoproliferative Disease
  25. X-Linked Myotubular Myopathy

Other conditions eligible for the compassionate allowance program are:

  • Acute Leukemia
  • Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent
  • Adult Non-Hodgkin Lymphoma
  • Adult Onset Huntington Disease
  • Aicardi-Goutieres Syndrome
  • Alexander Disease (ALX) – Neonatal and Infantile
  • Allan-Herndon-Dudley Syndrome
  • Alobar Holoprosencephaly
  • Alpers Disease
  • Alpha Mannosidosis – Type II and III
  • Alstrom Syndrome
  • Alveolar Soft Part Sarcoma
  • Amegakaryocytic Thrombocytopenia
  • Amyotrophic Lateral Sclerosis (ALS)
  • Anaplastic Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent
  • Angelman Syndrome
  • Angiosarcoma
  • Aortic Atresia
  • Aplastic Anemia
  • Astrocytoma – Grade III and IV
  • Ataxia Telangiectasia
  • Atypical Teratoid/Rhabdoid Tumor
  • Batten Disease
  • Beta Thalassemia Major
  • Bilateral Optic Atrophy- Infantile
  • Bilateral Retinoblastoma
  • Bladder Cancer – with distant metastases or inoperable or unresectable
  • Breast Cancer – with distant metastases or inoperable or unresectable
  • Canavan Disease (CD)
  • Carcinoma of Unknown Primary Site
  • Caudal Regression Syndrome – Types III and IV
  • Cerebro Oculo Facio Skeletal (COFS) Syndrome
  • Cerebrotendinous Xanthomatosis
  • Child Neuroblastoma – with distant metastases or recurrent
  • Child Non-Hodgkin Lymphoma – recurrent
  • Child T-Cell Lymphoblastic Lymphoma
  • Chondrosarcoma – with multimodal therapy
  • Chronic Idiopathic Intestinal Pseudo Obstruction
  • Chronic Myelogenous Leukemia (CML) – Blast Phase
  • Coffin-Lowry Syndrome
  • Congenital Lymphedema
  • Cornelia de Lange Syndrome
  • Corticobasal Degeneration
  • Creutzfeldt-Jakob Disease (CJD) – Adult
  • Cri du Chat Syndrome
  • Degos Disease – Systemic
  • DeSanctis Cacchione Syndrome
  • Dravet Syndrome
  • Early-Onset Alzheimer’s Disease
  • Edwards Syndrome (Trisomy 18)
  • Eisenmenger Syndrome
  • Endometrial Stromal Sarcoma
  • Endomyocardial Fibrosis
  • Ependymoblastoma (Child Brain Tumor)
  • Erdheim Chester Disease
  • Esophageal Cancer
  • Esthesioneuroblastoma
  • Ewing Sarcoma
  • Farber’s Disease (FD) – Infantile
  • Fatal Familial Insomnia
  • Fibrodysplasia Ossificans Progressiva
  • Follicular Dendritic Cell Sarcoma – metastatic or recurrent
  • Friedreichs Ataxia (FRDA)
  • Frontotemporal Dementia (FTD), Picks Disease -Type A – Adult
  • Fryns Syndrome
  • Fucosidosis – Type 1
  • Fukuyama Congenital Muscular Dystrophy
  • Fulminant Giant Cell Myocarditis
  • Galactosialidosis – Early and Late Infantile Types
  • Gallbladder Cancer
  • Gaucher Disease (GD) – Type 2
  • Giant Axonal Neuropathy
  • Glioblastoma Multiforme (Adult Brain Tumor)
  • Glioma Grade III and IV
  • Glutaric Acidemia – Type II
  • Head and Neck Cancers – with distant metastasis or inoperable or unresectable
  • Heart Transplant Graft Failure
  • Heart Transplant Wait List – 1A/1B
  • Hemophagocytic Lymphohistiocytosis (HLH) – Familial Type
  • Hepatoblastoma
  • Hepatopulmonary Syndrome
  • Hepatorenal Syndrome
  • Histiocytosis Syndromes
  • Hoyeaal-Hreidarsson Syndrome
  • Hutchinson-Gilford Progeria Syndrome
  • Hydranencephaly
  • Hypocomplementemic Urticarial Vasculitis Syndrome
  • Hypophosphatasia Perinatal (Lethal) and Infantile Onset Types
  • Hypoplastic Left Heart Syndrome
  • I Cell Disease
  • Idiopathic Pulmonary Fibrosis
  • Intracranial Hemangiopericytoma
  • Infantile Free Sialic Acid Storage Disease
  • Infantile Neuroaxonal Dystrophy (INAD)
  • Infantile Neuronal Ceroid Lipofuscinoses
  • Inflammatory Breast Cancer (IBC)
  • Jervell and Lange-Nielsen Syndrome
  • Joubert Syndrome
  • Junctional Epidermolysis Bullosa – Lethal Type
  • Juvenile Onset Huntington Disease
  • Kidney Cancer – inoperable or unresectable
  • Krabbe Disease (KD) – Infantile
  • Kufs Disease – Type A and B
  • Large Intestine Cancer – with distant metastasis or inoperable, unresectable or recurrent
  • Late Infantile Neuronal Ceroid Lipofuscinoses
  • Left Ventricular Assist Device (LVAD) Recipient
  • Leigh’s Disease
  • Leiomyosarcoma
  • Leptomeningeal Carcinomatosis
  • Lesch-Nyhan Syndrome (LNS)
  • Lewy Body Dementia
  • Liposarcoma – metastatic or recurrent
  • Lissencephaly
  • Liver Cancer
  • Lowe Syndrome
  • Lymphomatoid Granulomatosis – Grade III
  • Malignant Brain Stem Gliomas – Childhood
  • Malignant Ectomesenchymoma
  • Malignant Gastrointestinal Stromal Tumor
  • Malignant Germ Cell Tumor
  • Malignant Melanoma – with metastases
  • Malignant Multiple Sclerosis
  • Malignant Renal Rhabdoid Tumor
  • Mantle Cell Lymphoma (MCL)
  • Maple Syrup Urine Disease
  • Marshall-Smith Syndrome
  • Mastocytosis – Type IV
  • MECP2 Duplication Syndrome
  • Medulloblastoma – with metastases
  • Menkes Disease – Classic or Infantile Onset Form
  • Merkel Cell Carcinoma – with metastases
  • Merosin Deficient Congenital Muscular Dystrophy
  • Metachromatic Leukodystrophy (MLD) – Late Infantile
  • Mitral Valve Atresia
  • Mixed Dementias
  • MPS I, formerly known as Hurler Syndrome
  • MPS II, formerly known as Hunter Syndrome
  • MPS III, formerly known as Sanfilippo Syndrome
  • Mucosal Malignant Melanoma
  • Multicentric Castleman Disease
  • Multiple System Atrophy
  • Myoclonic Epilepsy with Ragged Red Fibers Syndrome
  • Neonatal Adrenoleukodystrophy
  • Nephrogenic Systemic Fibrosis
  • Neurodegeneration with Brain Iron Accumulation – Types 1 and 2
  • NFU-1 Mitochondrial Disease
  • Niemann-Pick Disease (NPD) – Type A
  • Niemann-Pick Disease-Type C
  • Nonketotic Hyperglycinemia
  • Non-Small Cell Lung Cancer – with metastases to or beyond the hilar nodes or inoperable, unresectable or recurrent
  • Obliterative Bronchiolitis
  • Ohtahara Syndrome
  • Oligodendroglioma Brain Tumor – Grade III
  • Ornithine Transcarbamylase (OTC) Deficiency
  • Orthochromatic Leukodystrophy with Pigmented Glia
  • Osteogenesis Imperfecta (OI) – Type II
  • Osteosarcoma, formerly known as Bone Cancer – with distant metastases or inoperable or unresectable
  • Ovarian Cancer – with distant metastases or inoperable or unresectable
  • Pancreatic Cancer
  • Pallister-Killian Syndrome
  • Paraneoplastic Pemphigus
  • Patau Syndrome (Trisomy 13)
  • Pearson Syndrome
  • Pelizaeus-Merzbacher Disease-Classic Form
  • Pelizaeus-Merzbacher Disease-Connatal Form
  • Peripheral Nerve Cancer – metastatic or recurrent
  • Peritoneal Mesothelioma
  • Peritoneal Mucinous Carcinomatosis
  • Perry Syndrome
  • Phelan-McDermid Syndrome
  • Pleural Mesothelioma
  • Pompe Disease – Infantile
  • Primary Cardiac Amyloidosis
  • Primary Central Nervous System Lymphoma
  • Primary Effusion Lymphoma
  • Primary Progressive Aphasia
  • Progressive Bulbar Palsy
  • Progressive Multifocal Leukoencephalopathy
  • Progressive Supranuclear Palsy
  • Prostate Cancer – Hormone Refractory Disease – or with visceral metastases
  • Pulmonary Atresia
  • Pulmonary Kaposi Sarcoma
  • Retinopathy of Prematurity – Stage V
  • Rett (RTT) Syndrome
  • Revesz Syndrome
  • Rhabdomyosarcoma
  • Rhizomelic Chondrodysplasia Punctata
  • Roberts Syndrome
  • Salivary Tumors
  • Sandhoff Disease
  • Schindler Disease – Type 1
  • Seckel Syndrome
  • Severe Combined Immunodeficiency – Childhood
  • Single Ventricle
  • Sjogren-Larsson Syndrome
  • Sinonasal Cancer
  • Small Cell Cancer (of the Large Intestine, Ovary, Prostate, Thymus, or Uterus)
  • Small Cell Lung Cancer
  • Small Intestine Cancer – with distant metastases or inoperable, unresectable or recurrent
  • Smith Lemli Opitz Syndrome
  • Soft Tissue Sarcoma – with distant metastases or recurrent
  • Spinal Muscular Atrophy (SMA) – Types 0 and 1
  • Spinal Nerve Root Cancer-metastatic or recurrent
  • Spinocerebellar Ataxia
  • Stiff Person Syndrome
  • Stomach Cancer – with distant metastases or inoperable, unresectable or recurrent
  • Subacute Sclerosing Panencephalitis
  • Tabes Dorsalis
  • Tay Sachs Disease – Infantile Type
  • Thanatophoric Dysplasia – Type 1
  • The ALS/Parkinsonism Dementia Complex
  • Thyroid Cancer
  • Transplant Coronary Artery Vasculopathy
  • Tricuspid Atresia
  • Ullrich Congenital Muscular Dystrophy
  • Ureter Cancer – with distant metastases or inoperable, unresectable or recurrent
  • Usher Syndrome – Type I
  • Walker Warburg Syndrome
  • Wolf-Hirschhorn Syndrome
  • Wolman Disease
  • X-Linked Lymphoproliferative Disease
  • X-Linked Myotubular Myopathy
  • Xeroderma Pigmentosum
  • Zellweger Syndrome